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Description
The current medical records systems in Poland lead to patients potentially being at risk of receiving ineffective treatment or treatment with adverse events, without well-timed assessment and correction, resulting in lost resources, reduced quality of treatment and hampered administrative management of the important endpoints in relation to healthcare. Therefore the principal objective of POLNOR-RHEUMA is to improve (1) patient care, (2) health outcomes, and (3) rheumatology research in Poland. To adress these challanges the POLNOR-RHEUMA Project will design, deliver and implement a structured patient medical record system for both daily clinical care and for collecting national, high-quality registry data in one workflow. The primary benefitiar would be rheumatic patients since the project aims at improving the quality of care, reducing health inequalities by implementing standardised medical follow-ups for patients with rheumatic diseases combined with the T2T in the clinic, along with exploring the epidemiology of JIA and adult arthritis disorders by systematic and longitudinal monitoring of important disease parameters. The secondary beneficiary side would be a scientific commnity of rheumatology at Jagiellonian University as the project aims at developing new pathways of research including co-operation with Norway partner. The added value of partnership is to be: (1) introducing a new approache for colleting and analyzing medical data in Jagiellonian University Rheumatology Department which is already used in Norway, (2) adopting in Poland a know-how in building patients database and imroving health care in long run perspective with ultimate construction of local and country registry for real world evidence and (3) polish IIT partner (KABMU) would gain neccessary know-how and experience in database building and data management with co-operation with norwegian IIT (DiagraphIT)